An Update and a Few Favorite Songs

I’ve been wanting to share five songs that have become so meaningful to me over the years as I’ve wrestled with surrendering my will to God’s and understanding His sovereignty in difficult circumstances.  Two of them were introduced to me in the past few months of our Trisomy 13 journey and are now included among the favorites that have comforted me through this experience and helped me to express my trust in our perfectly wise, loving heavenly Father.

We came home from the hospital yesterday with deeply grieving and very tired children and have had two days of intense parenting… getting ourselves regrouped and working through a myriad of emotions.  Each big sibling is processing our loss in very different ways, so we find ourselves in need of much wisdom to know what each one needs from us and the strength to meet their needs.

Tonight I’m alone for a few hours while the kids are at AWANA, thankful for time to think through all that has transpired and listen again to each of these songs.  I’m sharing them here for any of you who would benefit from meditating on the powerful messages they convey.  Whether you already know them or this is your first exposure, I hope they will be a blessing to you.

Tomorrow, we will share a few favorite pictures of Joel.  His memorial service will be held graveside on Friday for our immediate family.  We wish we could extend the invitation to the many of you who have supported us in countless ways on this journey, but after much deliberation and weighing a wide variety of factors, a private service seems to be the most appropriate.  Thank you for your understanding and for your continued prayers.



3 thoughts on “An Update and a Few Favorite Songs

  1. My son had Trisomy 13 and passed away 5 days after his birth. It’s been two months now since he’s been gone. I miss him terribly. I know he is in Heaven and I am comforted by that, but that doesn’t stop me from wishing he were here with me, instead. Heaven can wait, you know? Until old age. Babies should stay with their mamas.


    I am so sorry for your loss. Your Joel and my Aaron are probably friends by now. I think all the angel babies find each other in Heaven and have one big playdate 😉

    God bless you and comfort you,


  2. Im sorry for you ando Joel. I lost my boy (Angel, his name) in 2013. Its always sad, but better for joel and for you. Thanks for share your lovestory.


  3. Thank you so much for sharing so openly. In my experience, sharing is a wonderful way to move toward healiing. We find this in GriefShare so often that when people who have had losses can share their healing begins. Just last week one participant wanted to share the song, “Just be Held” by Casting Crowns. As you feel able you may want to check out if you are not familiar with the program. I highly recommend it. Love to you and thanks again for sharing.


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